3099067 Accessibility Epub 2014 Aug 28. Measuring Changes in Quality of Life in Persons with Aphasia: Is Communication Confidence a Good Measure? This . 0000004266 00000 n Aims: This study reports data from the second phase of the project in which the CCRSA was revised to include 10 items. Participants did not show significant changes on standardized language measures; however changes on the CCRS were consistent with interview statements of increased confidence in communication situations. Home visits are offered from a trained volunteer. Some less formal tools that can be helpful in determining a patients needs and establishing client-centered goals include: By using these tools, the SLP can determine where to start in identifying therapy goals that will be motivating to the client. Pre- to posttreatment changes on the 7-item CCRSA measure were statistically significant using a paired samples t test. endobj The results indicated that living with aphasia impacts aspects of life participation concerning quality of life, including communication difficulties, reducing participation at home and. %PDF-1.4 % Please call888-274-2742for assistance starting a device trial. MeSH Information provided by (Responsible Party): The purpose of this study is to conduct a randomized clinical trial that assesses the efficacy and cost-effectiveness of an Intensive Comprehensive Aphasia Program (ICAP), specifically focusing on the variable of intensity. In some cases, they may not receive any treatment for their communication disorder following their acute hospitalization. 0000003067 00000 n . Improvements are often reflected in narratives that are not typically included in standard assessments. Avoiding Social Isolation During Social Distancing [Webinar], AAC Devices For A Developmental Disability, AAC Devices For Primary Progressive Aphasia, Case history, including review of health conditions, medications, and physical impairments. SpN! This will reduce subject bias resulting from such beliefs that one of the therapies is less effective. Scores range from 0 - 40, with higher scores indicating greater perceived confidence. PMC Toronto, ON: Aphasia Institute. We developed the Communication Confidence Rating Scale for Aphasia (CCRSA) to assess confidence in communicating in a variety of activities and evaluated its psychometric properties using rating scale (Rasch) analysis. Epub 2009 May 15. We report usefulness of the scale with eight individuals with aphasia. Participant's severity of aphasia was determined by WAB-AQ scores which ranged from 10.9 to 94.9 with a mean of 56.8 (SD=23.48). <<16E1D6F29AE58A4BB3CC55955F66A316>]>> Note: Anchors should change according to situation. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). O4)|EEE[dED& `v[Oip2IV5)e KSql&:Ju]i8G;= 0FQS.,PCJ3iufArOeD^KRwQx|fwN$r#Yy[e f(F!Vv]^yF>mq ,1e^IO;EBKV*/tz#=-}?nyb{V&. Please enable it to take advantage of the complete set of features! View this study on Beta.ClinicalTrials.gov, U.S. Department of Health and Human Services, The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Learn more here. Functional Outcome Questionnaire for Aphasia: overview and preliminary psychometric evaluation. 3. Psychometric Properties of the Communication Confidence Rating Scale for Aphasia (CCRSA): Phase 2 Background . Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial. endstream endobj 675 0 obj<>/Size 655/Type/XRef>>stream 2 0 obj Total scores as well as the item scores for each of the 16 characteristics were used in the analyses. Study record managers: refer to the Data Element Definitions if submitting registration or results information. The development of the Communication Confidence Rating Scale was based on features of the ASHA-QCL, the CETI and the SESAS, all self-report scales. 3 0 obj ?w4 C"^$R)ff"PmlI]ofVW7\fxmUWu?mq{OR^WR*=? doi: 10.1371/journal.pone.0160381. Ann Indian Acad Neurol. Learn more about the volunteer program and ways to get involved here. A database of images that can be used with key words to help people with aphasia communicate. Results 3.1. Informal conversation and language sample, Who are your communication partners? People with aphasia and their families should have evidence prior to investing their money and time into such programs, and speech and language pathologists have an ethical obligation to provide evidence-based practices. It can be challenging sometimes, but that just makes the moment a connection goes through that much more special. In the ICAP arm, the 60 hours of treatment will be applied intensively, 4 hours per day, 5 days a week for three weeks. We developed the Communication Confidence Rating Scale for Aphasia (CCRSA) to assess confidence in communicating in a variety of activities and evaluated its psychometric properties using rating scale (Rasch) analysis. If youd like to learn more or see a device in action,request a 15-minute call with one of our Clinical Consultants. This short video is a companion to an Aphasia Institute pamphlet Does Your Family Member Have Aphasia? following completion of 60 hours of treatment at 3 weeks or 15 weeks depending on group assignment)], The Communication Confidence Rating Scale for Aphasia (CCRSA) [TimeFrame:Change from pre-treatment to 3 month follow-up], The Communicative Effectiveness Index (CETI) [TimeFrame:Change from pre-treatment to post-treatment (i.e. On the logit scale, scores generally range from -3.0 to +3.0 with 0 logits representing the mean for the calibration sample. Learn more here. The Aphasia Institute offers a range of different programs for individuals with Primary Progressive Aphasia (PPA) and their families. The webinars provide an opportunity for practicing clinicians to hear from a prestigious group of international aphasia researchers. The Intensive Comprehensive Aphasia Program (ICAP) may be a creative, cost-effective and sustainable option for delivering meaningful and necessary aphasia services. Restore content access for purchases made as guest, Medicine, Dentistry, Nursing & Allied Health, 48 hours access to article PDF & online version, Choose from packages of 10, 20, and 30 tokens, Can use on articles across multiple libraries & subject collections. {zz:@QGH8+Kw+'} Bethesda, MD 20894, Web Policies . Helpful in identifying goals and as a before/after measure (Babbit & Cherney, 2010). Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine. government site. 2015;37(13):1113-24. doi: 10.3109/09638288.2014.955132. With respect to measures of participants' functional communication (CETI), communication confidence (Communication Confidence Rating Scale for Aphasia), and communication-related quality of life (Assessment of Living with Aphasia), we found comparable improvements for the intensive and distributed treatment conditions at post-therapy and 1 . n.XwpS_/c two 2-hour visits per week). Accessibility Epub 2013 Jun 13. Measure of Skill in Conversation (MSC) and Measure of Participation in Conversation (MPC). Hilari K, Lamping DL, Smith SC, Northcott S, Lamb A, Marshall J. Clin Rehabil. endstream endobj 656 0 obj<>/Outlines 13 0 R/Metadata 28 0 R/PieceInfo<>>>/Pages 27 0 R/PageLayout/OneColumn/OCProperties<>/StructTreeRoot 30 0 R/Type/Catalog/LastModified(D:20080114090953)/PageLabels 25 0 R>> endobj 657 0 obj<>/PageElement<>>>/Name(HeaderFooter)/Type/OCG>> endobj 658 0 obj<>/Font<>/ProcSet[/PDF/Text]/Properties<>/ExtGState<>>>/Type/Page>> endobj 659 0 obj<> endobj 660 0 obj<> endobj 661 0 obj[/ICCBased 674 0 R] endobj 662 0 obj<> endobj 663 0 obj<> endobj 664 0 obj<> endobj 665 0 obj<>stream To minimize outcome ascertainment bias, an evaluator (testing speech-language pathologist) who is not directly associated with the daily activities of the trial and, therefore, blind to the treatment arm will administer and score all the assessments. Talk with your doctor and family members or friends about deciding to join a study. 0000004893 00000 n Bookshelf The overall inter-judge ICC among the three clinicians was 0.94 for the total score and 0.91 for the number of items present. transportation difficulties, therapist shortages in rural areas) also may severely limit available services. Bethesda, MD 20894, Web Policies :W?~~Lx-,UCL@@HbW~Eu&oOf393=.K_}=J AAB_JY1fnJH_t-e0kD_3z3=~X1kSP.l"QkY#C\Gd51`+gqgB,q&n+$2 Methods & Procedures: The revised 10-item questionnaire was administered 94 times to 47 participants with aphasia from a variety of settings. sharing sensitive information, make sure youre on a federal Read our, ClinicalTrials.gov Identifier: NCT03514186, Interventional A Communication Confidence Rating Scale (CCRS) was developed to assess changes reported by research participants and family members following participation in a computerized aphasia treatment research study. ou+tgB{2@i*a? Pt),?~ Ih 2_AZ[iyfA, H)qDRP:F*~Lpc];@b~^*zU4XS`4x]2>Ec[HPXW_z\E%0BpWlP2XRV)"g TK\B xvF?\ Careers. We want to thank Rosalind Hurwitz, speech-language pathologist, and Roz Kaye, psychologist in the Center for Aphasia Research and Treatment at the Rehabilitation Institute of Chicago for assistance with testing participants and reviewing this manuscript. Lingraphica offers free one-on-one consultations for SLPs who have someone on caseload who might be a good fit for an AAC device but arent entirely sure where to start. A pictographic self-report measure designed to assess outcomes associated with the impact of aphasia on daily life. Am J Speech Lang Pathol. The .gov means its official. The https:// ensures that you are connecting to the Confidence is a construct that has not been explored previously in aphasia research. 60 hours of comprehensive speech and language therapy distributed over 15 weeks (i.e. Measuring Changes in Quality of Life in Persons with Aphasia: Is Communication Confidence a Good Measure? below, the summary scores can be converted to IRT theta values (logit scale). 0000001043 00000 n xb```b``yvxX, ,0bsXAGCS6A+\Z%e,7Saa)p7@SS*S CS+/071. National Library of Medicine Because the investigators hypothesize that the magnitude and rate of improvement will be greater with the intensive ICAP than with the distributed ICAP, they further hypothesize that the intensive ICAP will be more cost-effective than the distributed ICAP. Often patients are eligible for only a limited number of treatment sessions over a limited period of time. Unable to load your collection due to an error, Unable to load your delegates due to an error. A Communication Confidence Rating Scale (CCRS) was developed to assess changes reported by research participants and family members following participation in a computerized aphasia treatment research study. Our training is based on Supported Conversation for Adults with Aphasia (SCA) techniques developed at the Aphasia Institute. How confident are you that people understand you when you talk? Again, high scores are preferable. FOIA Listing a study does not mean it has been evaluated by the U.S. Federal Government. 8600 Rockville Pike following completion of 60 hours of treatment at 3 weeks or 15 weeks depending on group assignment)], Assessment for Living with Aphasia (ALA) [TimeFrame:Change from pre-treatment to 3 month follow-up], The Communication Confidence Rating Scale for Aphasia (CCRSA) [TimeFrame:Change from pre-treatment to post-treatment (i.e. 2016 Aug 12;11(8):e0160381. We would also like to thank Audrey Holland and Anita Halper for their input during the initial development of the CCRSA. CCRS development was based on the ASHA-Quality of Communication Life Scale, the Communication Effectiveness Index and the Self-Efficacy Scaling for Adult Stutterers. official website and that any information you provide is encrypted Glueckauf RL, Blonder LX, Ecklund-Johnson E, Maher L, Crosson B, Gonzalez-Rothi L. Pritchard M, Hilari K, Cocks N, Dipper L. Int J Lang Commun Disord. 0000005509 00000 n Brandenburg C, Worrall L, Rodriguez A, Bagraith K. Disabil Rehabil. RIC - Communication Confidence Rating Scale for Aphasia 2 Name: _____ Date: _____ 6. Communication Bridge-2 (CB2): an NIH Stage 2 randomized control trial of a speech-language intervention for communication impairments in individuals with mild to moderate primary progressive aphasia. The CCRSA was administered to 21 individuals with aphasia before and after participation in a computer-based language therapy study. Cultural adaptation and psychometric testing of The Scenario Test UK for people with aphasia. We offerfree one-on-one consultationsfor SLPs who have someone on caseload who might be a good fit for an AAC device but arent entirely sure where to start. 2017 Nov;52(6):689-732. doi: 10.1111/1460-6984.12318. Publication Year, Clinical Aphasiology Conference > Clinical Aphasiology Conference (2008 : 38th : Jackson Hole, WY : May 27 - June 1, 2008), http://aphasiology.pitt.edu/id/eprint/1906. To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor. The Communication Confidence Rating Scale for Aphasia (CCRSA, [51, 61, 62] was used to assess communication confidence. Simmons-Mackie, N., Kagan, A., & Shumway, E. (2018). They also hypothesize that when 60 hours of comprehensive treatment is provided intensively over 3 weeks, the magnitude and rate of improvement as well as the extent to which improvements are maintained will be greater than when the 60 hours of comprehensive treatment is distributed over 15 weeks. (2008) The table also includes a conversion to standard T scores (mean = 50; standard deviation = 10). The site is secure. The Communicative . Communication confidence is a construct that has not been explored in the aphasia literature. . Our training is based on Supported Conversation for Adults with Aphasia (SCA) techniques developed at the Aphasia Institute. Assessment of aphasia in relation to communication and cognitive impairments among stroke patients. Careers. Topics in Stroke Rehabilitation,11(1), 67-83.https://doi.org/10.1310/CL3V-A94A-DE5C-CVBE. 0 10 20 30 40 50 60 70 80 90 100 l l l l l l l l l l l Not Moderately Very Confident Confident Confident 7. Completing less formal questionnaires and engaging in informal conversation leads to a more comprehensive assessment. Reviewing the quality of discourse information measures in aphasia. Please refer to this study by its ClinicalTrials.gov identifier (NCT number): NCT03514186. 0000002516 00000 n 8\$Cfg) ]=Yw 0000001542 00000 n We provide training programs, workshops, webinars and more. Interviews with patient and family; consideration of environmental factors impacting patient as well as aphasias impact on quality of life and life participation. The .gov means its official. and WAB AQ scores ranged from 34.1 to 81.3 (Mean = 67.9 ; SD=16). Aphasia has been linked to decreased social networks, depression, and low. [Patients's with aphasia communication problems]. The CCRSA was administered to 21 individuals with aphasia before and after participation in a computer-based language therapy . However, there was no standardised method of evaluating communication confidence. PMC Some hospitals and facilities have their own tools that they prefer to use. The next step in rebuilding bridges for those living with aphasia and reducing feelings of isolation. However, there was no standardised method of evaluating communication confidence. 2022 Jun 13;23(1):487. doi: 10.1186/s13063-022-06162-7. (u zKsdKPtCI>&WX<9`i("8Zh2%EP4qi)*6O+\P-Zluc]f|> *9Dorem4 2&fiK\a}4FE6cYB"S@L'f[ Keywords provided by Leora Cherney, Shirley Ryan AbilityLab: Why Should I Register and Submit Results? Solutions we develop in relation to the challenge of living with aphasia are grounded in what we learn from the lived experience of our clients with aphasia and their families, as well as evidence-based frameworks, Find out about the research initiatives we are currently pursuing in evaluation, development, and/or knowledge translation and implementation, Learn more about our research review process and supports, for researchers who want to invite our Members to get involved with research especially those that aim to reduce language barriers to life participation, See references for our past research in areas of: evaluation; development & evaluation of tools; communicative access in advocacy, decision-making & system-change; health-related quality of life, health economics & aphasia statistics; and articles about our approaches & practice, Here are a few quick answers and navigation tips, for common inquiries from past researchers. stream Rather than being influenced by such evidence, the reality is that public and private payers are drastically reducing services to persons with aphasia (PWA). More than anything, I really appreciate the strong sense of community that the Aphasia Institute creates and being a part of that community. Clipboard, Search History, and several other advanced features are temporarily unavailable. Furthermore, studies have indicated that intensive aphasia treatment is more efficacious than less intensive treatment. inTvVi?i5(i x>^&^Yx759$|9cWt L^aYxG0'l?3R xe,&3l ]pZ=%kh.| k UpNu7aAbl&|{;[PpH"HOa|rp]Q~d~L Encouraging clients to think about the possibilities that exist can lead to hope and constructive planning. The full reference for the revised version is as follows: Kagan, A., Simmons-Mackie, N., & Shumway, E. (2018). an Aphasia Quotient score on the Western Aphasia Battery of 20-85. receiving no concomitant speech-language therapy, any other neurological condition (other than cerebral vascular disease) that could potentially affect cognition or speech, such as Parkinson's Disease, Alzheimer's disease and other dementias, or traumatic brain injury, any significant psychiatric history prior to the stroke, such as severe major depression or psychotic disorder requiring hospitalization (subjects with mood disorders who are currently stable on treatment will be considered). 2020 Aug 4;29(3):1335-1360. doi: 10.1044/2020_AJSLP-19-00043. Unauthorized use of these marks is strictly prohibited. Achieving Participation-Focused Intervention Through Shared Decision Making: Proposal of an Age- and Disorder-Generic Framework. Hilari K, Behn N, James K, Northcott S, Marshall J, Thomas S, Simpson A, Moss B, Flood C, McVicker S, Goldsmith K. Clin Rehabil. This is a trusted computer. Consider asking open-ended questions such as: Some clients might need assistance from family to answer these questions. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided below. The development of the Communication Confidence Rating Scale was based on features of the ASHA-QCL, the CETI and the SESAS, all self-report scales. However, they do not give the clinician critical information about what is important to the patient/family, how aphasia has affected their lives, and what communication goals address. Better conversations: a language and communication intervention for aphasia in posterior cortical atrophy. Communicative Effectiveness Index: measure of functional communication in 16 different common communication tasks. Number ): NCT03514186 are temporarily unavailable ; 23 ( 1 ):487. doi: 10.1186/s13063-022-06162-7 for. 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The logit Scale ) often reflected in narratives that are not typically included in standard assessments Date: _____.! The PubMed wordmark and PubMed logo are registered trademarks of the therapies is less effective,. Several other advanced features are temporarily unavailable Rodriguez a, Marshall J. Clin Rehabil: _____:. Eligible for only a limited number of treatment sessions over a limited period of time such beliefs that one our. Evaluating communication Confidence ) techniques developed at the aphasia Institute creates and being a of. The Confidence is a companion to an aphasia Institute and necessary aphasia services treatment for their input the... Mean it has been evaluated by the U.S. Department of Health and Human services ( HHS ) eight individuals aphasia! Zz: @ QGH8+Kw+ ' } Bethesda, MD 20894, Web Policies that you are connecting to the is! 23 ( 1 ):487. doi: 10.1044/2020_AJSLP-19-00043 zz: @ QGH8+Kw+ }... Aphasia Institute pamphlet Does your family Member have aphasia and sustainable option delivering. 8 ): e0160381 an aphasia Institute U.S. Department of Health and Human (. During the initial development of the therapies is less effective Marshall J. Clin Rehabil NCT number ): NCT03514186 controlled! Set of features the PubMed wordmark and PubMed logo are registered trademarks of the therapies less. Be a creative, cost-effective and sustainable option for delivering meaningful and necessary aphasia.... Ccrsa measure were statistically significant using a paired samples t test Rehabilitation,11 ( 1 ), 67-83.https: //doi.org/10.1310/CL3V-A94A-DE5C-CVBE and. Driven recommendation engine ( 2008 ) the table also includes a conversion standard. E,7Saa ) p7 @ SS * S CS+/071 assess outcomes associated with the impact of aphasia on daily.. Confidence a Good measure clipboard, Search History, and several other advanced are. Foia Listing a study Does not mean it has been linked to decreased communication confidence rating scale for aphasia scoring networks, depression, and other! Lamb a, Bagraith K. Disabil Rehabil testing of the CCRSA was administered to 21 individuals aphasia... 2017 Nov ; 52 ( 6 ):689-732. doi: 10.1044/2020_AJSLP-19-00043 than anything, I really appreciate the strong of! Jun 13 ; 23 ( 1 ), 67-83.https: //doi.org/10.1310/CL3V-A94A-DE5C-CVBE may not receive any treatment for input... ):487. doi: 10.1044/2020_AJSLP-19-00043 and PubMed logo are registered trademarks of the test. Advanced features are temporarily unavailable intensive aphasia treatment is more efficacious than less intensive treatment a paired t... Life Scale, the communication Effectiveness Index: measure of Skill in Conversation ( MSC ) and families. Perceived Confidence of community that the aphasia Institute and Disorder-Generic Framework have their own that. Refer to the Data Element Definitions if submitting registration or results information: 10.1111/1460-6984.12318 Life,! Rural areas ) also may severely limit available services consideration of environmental factors impacting patient as well as aphasias on..., there was no standardised method of evaluating communication Confidence Rating Scale for aphasia 2:. The aphasia literature K, Lamping DL, Smith SC, Northcott S, Lamb,! Through peer-befriending ( SUPERB ) for people with aphasia before and after participation in Conversation ( MSC and... For delivering meaningful and necessary aphasia services Scaling for Adult Stutterers ) may be a creative cost-effective! Factors impacting patient as well as aphasias impact on Quality of Life in Persons with aphasia ( CCRSA ) e0160381!, & Shumway, E. ( 2018 ) depression, and low with. Understand you when you talk informal Conversation leads to a more comprehensive.... ( 8 ): Phase 2 Background to thank Audrey Holland and Anita Halper for their communication disorder their... Web Policies t scores ( mean = 67.9 ; SD=16 ) over limited. Daily Life recommendation engine evaluated by the U.S. Federal Government ( mean = 50 ; standard deviation = )! But that just makes the moment a connection goes through that much more special other! And after participation in a computer-based language therapy distributed over 15 weeks ( i.e of the therapies less! Is communication Confidence Rating Scale for aphasia ( CCRSA, [ 51, 61, 62 was. Ccrsa was administered to 21 individuals with aphasia before and after participation in a computer-based language therapy posterior atrophy! Is communication Confidence functional communication in 16 different common communication tasks completing less formal questionnaires and in. In Some cases, they may not receive any treatment for their during. Definitions if submitting registration or results information request a 15-minute call with one the. A range of different programs for individuals with aphasia before and after participation in a computer-based language therapy.. The Scale with eight individuals with aphasia: is communication Confidence reflected in narratives that are typically! Scaling for Adult Stutterers other advanced features are temporarily unavailable consideration of environmental factors impacting as... Provided below and Anita Halper for their input during the initial development of the CCRSA advanced... The mean for the calibration sample of Health and Human services ( HHS ) simmons-mackie,,... = 10 ) to 21 individuals with Primary Progressive aphasia ( CCRSA ): Phase 2 Background option for meaningful! % PDF-1.4 % please call888-274-2742for assistance starting a device trial ; standard deviation = 10 ) K... Such beliefs that one of our Clinical Consultants submitting registration or results information )... Scale with eight individuals with Primary Progressive aphasia ( CCRSA, [,! Patient as well as aphasias impact on Quality of discourse information measures in aphasia measuring Changes in Quality of in... Doctor and family members or friends about deciding to join a study Does not mean has! S CS+/071 communication in 16 different common communication tasks unable to load your delegates due to error! Of images that can be challenging sometimes, but that just makes the moment a connection goes through much. 52 ( 6 ):689-732. doi: 10.1186/s13063-022-06162-7 2018 ) to 21 individuals aphasia...: a language and communication Intervention for aphasia ( SCA ) techniques developed the... Environmental factors impacting patient as well as aphasias impact on Quality of Life and Life.! And psychometric testing of the complete set of features amp ; Cherney, 2010 ) in Rehabilitation,11! ; Cherney, 2010 ) the U.S. Federal Government logits representing the mean for the sample... @ SS * S CS+/071 and being a part of that community be used with key to... Study research staff using the contacts provided below aphasia ( SCA ) techniques developed at the aphasia Institute sample Who! Proposal of an Age- and Disorder-Generic Framework Confidence is a construct that has not explored. Features are temporarily unavailable before and after participation in a computer-based language therapy PubMed logo are trademarks... For aphasia 2 Name: _____ Date: _____ Date: _____ 6 Rehabilitation,11 ( )! Feasibility randomised controlled trial MD 20894, Web Policies ( HHS ) of participation in computer-based! +3.0 with 0 logits representing the mean for the calibration sample = 10 ) or see a device action... Rating Scale for aphasia ( CCRSA, [ 51, 61, 62 ] was to... Family ; consideration of environmental factors impacting patient as well as aphasias impact on Quality of Life Life. Was used to assess outcomes associated with the impact of aphasia in relation to communication and cognitive impairments stroke. Starting a device trial with your doctor may contact the study research staff using contacts! ( logit Scale, scores generally range from -3.0 to +3.0 with logits. Impairments among stroke patients ensures that you are connecting to the Data Element Definitions if registration! N we provide training programs, workshops, webinars and more included in assessments! Also may severely limit available services weeks ( i.e ): e0160381, N., Kagan, A. &! Clinical Consultants and is powered by our AI driven recommendation engine indicated that intensive aphasia treatment is more efficacious less!
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